Multiple Sclerosis and 4ap

I was having huge fatigue problems a few months ago (even though I have had multiple sclerosis for several years). It got to be so bad that I would wake up from a wonderful night's sleep absolutely exhausted. Part way through the day on most days I would really fight the urge to take a nap. I had never faced this in my journey with multiple sclerosis so it was a bit of a shock when it just started happening.

Finally, it got so bad that when I went to my neurologist, I asked (begged) for anything that might help with this side effect of multiple sclerosis. She recommended I start immediately on 4-amino pyradine. So here is my take on it:

- it is predominately made by a compounding pharmacy (there were only five of these in the major metro area surrounding me)
- I had difficulty (and still do) taking it too late in the early evening that it disrupts my sleep
- if there is too much time between when I take my last dosage at night and my first dosage the next day I have huge problems with nausea and dizziness
- if I do not take it with food I get terrible abdominal pains
- I would also rather die than not have this as part of my life with multiple sclerosis!

4ap has made a big difference in my life in the past several weeks. The side effects are nothing in comparison to how it makes me feel- as if I sometimes don't have multiple sclerosis. I have energy, enthusiasm to do things and I rarely have the need to rest during the day. This is a big, big difference for me.