My Life With MS

Monday, June 12, 2006

My doctor said no to Tysabri!

Multiple Sclerosis is a bear. All of the MS disease-modifying drugs seem to do the same thing which really isn't much (accept feeding on our hopes that the Multiple Sclerosis won't get worse). Last week I went for my my regular neurologist visit and I questioned why she seemed to shy away from Tysabri.

On previous visits my doctor avoided the Tysabri question. She told me that she is not in favor of Tysabri in place of or in addition to the other Multiple Sclerosis disease-modifying drugs. She said the odds were bad. Three people died in 3000 and that was just not good enough for her stamp of approval. I was advised that if I wanted to take it, I would need to find a new doctor to prescribe it.

This info was enough for me. I am no longer on the Tysabri bandwagon as a plausible means to turn my Multiple Sclerosis around. I will say that I think it is important for people to take risks to advance science but maybe this is not a risk I am willing to take.

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