You are your own best patient advocate!

I have been diagnosed with multiple sclerosis for about 5 years...however, I was in denial for the first 3 or so years. I didn't pay attention to it until I was having significant challenges walking. This was not too smart as I was not taking a disease-modifying drug as the National Multiple Sclerosis Society encourages you to consider taking. I then started on Copaxone and tolerated it really well. Later, when my symptoms seem to worsen, my doctor suggested taking Rebif. This, too, I tolerated well so I decided to remain on Rebif. It is my perception that Rebif is a little bit stronger medicine.

I almost wish I had started on Rebif but I believe my doctor, at the time, was just in the beginning stages of acquiring an interest/indepth knowledge of treating patients with multiple sclerosis. I partially believe he prescribed Copaxone because he had a better relationship the pharmaceutical sales rep for Teva (makers of Copaxone). Hmmm. I don't fault the doctor as how could he possibly be up on all of the latest medicines for various illnesses.

I now suscribe to the belief that you are your own best advocate and you are somewhat responsible for your health. You need to ask the doctor for recommendations for your health and you need to leave and evaluate your options. Then you have to research the pluses and minuses of different courses of action. Meet with your doctor again and discuss your findings. I no longer allow doctors to tell me what I must do. Together we make decisions. I have a choice and so do you. Take control of your situation, to the best that you can and make good decisions for you and your family.

Recently I was in the emergency room and I insisted on not having an IV. I pushed back on the nurses/doctors when they repeatedly insisted on putting one in my arm. I was surprised that they acquiesced to my demands to "wait and see how I do" before putting in the IV. As it turns out, I didn't need the IV at all. That minimized my personal trauma and it was another expense that didn't have to be covered by insurance. Interesting experience.

You are the best advocate you have!